{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,8,2]],"date-time":"2024-08-02T14:32:45Z","timestamp":1722609165365},"reference-count":73,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2019,4,24]],"date-time":"2019-04-24T00:00:00Z","timestamp":1556064000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010661","name":"Horizon 2020 Framework Programme","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010661","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Neuroinform."],"DOI":"10.3389\/fninf.2019.00028","type":"journal-article","created":{"date-parts":[[2019,4,24]],"date-time":"2019-04-24T10:05:25Z","timestamp":1556100325000},"update-policy":"http:\/\/dx.doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":30,"title":["Responsible Data Governance of Neuroscience Big Data"],"prefix":"10.3389","volume":"13","author":[{"given":"B. Tyr","family":"Fothergill","sequence":"first","affiliation":[]},{"given":"William","family":"Knight","sequence":"additional","affiliation":[]},{"given":"Bernd Carsten","family":"Stahl","sequence":"additional","affiliation":[]},{"given":"Inga","family":"Ulnicane","sequence":"additional","affiliation":[]}],"member":"1965","published-online":{"date-parts":[[2019,4,24]]},"reference":[{"key":"B1","doi-asserted-by":"publisher","first-page":"114","DOI":"10.1016\/j.futures.2018.01.005","article-title":"Accompanying technology development in the human brain project: from foresight to ethics management","volume":"102","author":"Aicardi","year":"","journal-title":"Futures"},{"key":"B2","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1080\/23299460.2017.1331101","article-title":"The integrated ethics and society programme of the Human Brain Project: reflecting on an ongoing experience","volume":"5","author":"Aicardi","year":"","journal-title":"Journal of Responsible Innovation"},{"key":"B3","doi-asserted-by":"publisher","first-page":"574","DOI":"10.1016\/j.neuron.2016.10.046","article-title":"The human brain project: creating a european research infrastructure to decode the human brain","volume":"92","author":"Amunts","year":"2016","journal-title":"Neuron"},{"key":"B4","unstructured":"The end of theory: the data deluge makes the scientific method obsolete AndersonC. WIRED.2008"},{"key":"B5","volume-title":"Review of Data Management Lifecycle Models.","author":"Ball","year":"2012"},{"key":"B6","doi-asserted-by":"publisher","first-page":"662","DOI":"10.1080\/1369118x.2012.678878","article-title":"Critical questions for big data: provocations for a cultural, technological, and scholarly phenomenon","volume":"15","author":"Boyd","year":"2012","journal-title":"Inf. Commun. Soc."},{"key":"B7","first-page":"115","article-title":"Coordinating decision-making in data management activities: a systematic review of data governance principles","volume-title":"International Conference on Electronic Government and the Information Systems Perspective EGOVIS 2016, LNCS 9820","author":"Brous","year":"2016"},{"key":"B8","first-page":"18","article-title":"Drawing ethical boundaries for data analytics","volume":"52","author":"Chalcraft","year":"2018","journal-title":"Inf. Manag."},{"key":"B9","volume-title":"Ethics for Big Data and Analytics.","author":"Chessell","year":"2014"},{"key":"B10","doi-asserted-by":"publisher","first-page":"239","DOI":"10.3389\/fnhum.2014.00239","article-title":"Big data, open science and the brain: lessons learned from genomics","volume":"8","author":"Choudhury","year":"2014","journal-title":"Front. Hum. Neurosci."},{"key":"B11","doi-asserted-by":"publisher","first-page":"5","DOI":"10.1080\/21507740.2015.1135831","article-title":"Ethical challenges of simulation-driven big neuroscience","volume":"7","author":"Christen","year":"2016","journal-title":"AJOB Neurosci."},{"key":"B12","doi-asserted-by":"publisher","first-page":"142","DOI":"10.1108\/ajim-11-2017-0251","article-title":"A critical analysis of lifecycle models of the research process and research data management","volume":"70","author":"Cox","year":"2018","journal-title":"Aslib J. Infor. Manag."},{"key":"B13","first-page":"1663","article-title":"Critiquing big data: politics, ethics, epistemology","volume":"8","author":"Crawford","year":"2014","journal-title":"Int. J. Commun."},{"key":"B14","unstructured":"SP12 opinion, human brain project2017"},{"key":"B15","volume-title":"Ethics of Big Data: Balancing Risk and Innovation.","author":"Davis","year":"2012"},{"key":"B16","doi-asserted-by":"publisher","first-page":"851","DOI":"10.1068\/d378t","article-title":"Codes of life: identification codes and the machine-readable world","volume":"23","author":"Dodge","year":"2005","journal-title":"Environ. Plan. D Soc. Space"},{"key":"B17","doi-asserted-by":"publisher","first-page":"532","DOI":"10.5465\/amr.1989.4308385","article-title":"Building theories from case study research","volume":"14","author":"Eisenhardt","year":"1989","journal-title":"Acad. Manag. Rev."},{"key":"B18","doi-asserted-by":"publisher","first-page":"25","DOI":"10.5465\/amj.2007.24160888","article-title":"Theory building from cases: opportunities and challenges","volume":"50","author":"Eisenhardt","year":"2007","journal-title":"Acad. Manag. J."},{"key":"B19","doi-asserted-by":"publisher","first-page":"1523","DOI":"10.1002\/asi.23294","article-title":"Big data, bigger dilemmas: a critical review: Big Data, bigger dilemmas: a critical review","volume":"66","author":"Ekbia","year":"2014","journal-title":"J. Assoc. Inform. Sci. Technol."},{"key":"B21","doi-asserted-by":"publisher","first-page":"34","DOI":"10.1016\/j.neuron.2015.03.038","article-title":"An ethics toolbox for neurotechnology","volume":"86","author":"Farah","year":"2015","journal-title":"Neuron"},{"key":"B22","volume-title":"Hype Cycle for Emerging Technologies.","author":"Fenn","year":"2011"},{"key":"B23","doi-asserted-by":"publisher","first-page":"20160360","DOI":"10.1098\/rsta.2016.0360","article-title":"What is data ethics?","volume":"374","author":"Floridi","year":"2016","journal-title":"Philos. Trans. R. Soc. A Math. Phys. Eng. Sci."},{"key":"B102","doi-asserted-by":"publisher","first-page":"689","DOI":"10.1007\/s11023-018-9482-5","article-title":"AI4People\u2014An ethical framework for a good AI society: opportunities, risks, principles, and recommendations","volume":"28","author":"Floridi","year":"2018","journal-title":"Minds and Machines"},{"key":"B24","doi-asserted-by":"publisher","first-page":"739","DOI":"10.1108\/ijmpb-08-2012-0049","article-title":"Getting real about Big Data: applying critical realism to analyse Big Data hype","volume":"6","author":"Fox","year":"2013","journal-title":"Int. J. Manag. ProJ. Bus."},{"key":"B25","doi-asserted-by":"publisher","first-page":"403","DOI":"10.1016\/j.ijinfomgt.2016.01.006","article-title":"An empirical study of the rise of big data in business scholarship","volume":"36","author":"Frizzo-Barker","year":"2016","journal-title":"Int. J. Inform. Manag."},{"key":"B26","doi-asserted-by":"publisher","first-page":"37","DOI":"10.1177\/0267323116682804","article-title":"From digital positivism and administrative big data analytics towards critical digital and social media research!","volume":"32","author":"Fuchs","year":"2017","journal-title":"Eur. J. Commun."},{"key":"B27","doi-asserted-by":"publisher","first-page":"137","DOI":"10.1016\/j.ijinfomgt.2014.10.007","article-title":"Beyond the hype: big data concepts, methods, and analytics","volume":"35","author":"Gandomi","year":"2015","journal-title":"Int. J. Inform. Manag."},{"key":"B29","volume-title":"Case Studies and Theory Development in the Social Sciences.","author":"George","year":"2005"},{"key":"B30","first-page":"9","article-title":"Responsible innovation: bringing together technology assessment, applied ethics, and STS research","volume":"7","author":"Grunwald","year":"2011","journal-title":"Enter. Work Innov. Stud."},{"key":"B31","volume-title":"Erl\u00e4uterungen zur Diskursethik.","author":"Habermas","year":"1991"},{"key":"B32","volume-title":"Moralbewu\u00dftsein und kommunikatives Handeln.","author":"Habermas","year":"2006"},{"key":"B33","doi-asserted-by":"publisher","first-page":"S82","DOI":"10.1080\/17445760.2017.1390092","article-title":"Digital decay","volume":"32","author":"Haslop","year":"2017","journal-title":"Int. J. Parall. Emer. Distrib. Syst."},{"key":"B35","unstructured":"The four V\u2019s of big data2014"},{"key":"B36","doi-asserted-by":"publisher","first-page":"62","DOI":"10.1145\/3064940","article-title":"Responsible research and innovation in the digital age","volume":"60","author":"Jirotka","year":"2017","journal-title":"Commun. ACM"},{"key":"B37","doi-asserted-by":"publisher","first-page":"262","DOI":"10.1177\/2043820613513388","article-title":"Big data and human geography: opportunities, challenges and risks","volume":"3","author":"Kitchin","year":"2013","journal-title":"Dialog. Hum. Geogr."},{"key":"B38","doi-asserted-by":"publisher","first-page":"205395171452848","DOI":"10.1177\/2053951714528481","article-title":"Big Data, new epistemologies and paradigm shifts","volume":"1","author":"Kitchin","year":"2014","journal-title":"Big Data Soc."},{"key":"B39","volume-title":"Data Governance: How to Design, Deploy, and Sustain An Effective Data Governance Program.","author":"Ladley","year":"2012"},{"key":"B40","unstructured":"3D data management: controlling data volume, velocity, and variety LaneyD. Meta Group Application Delivery Strategies2001"},{"key":"B41","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1007\/978-3-319-54024-5_1","article-title":"The tyranny of data? The bright and dark sides of data-driven decision-making for social good","volume-title":"Transparent Data Mining for Big and Small Data","author":"Lepri","year":"2017"},{"key":"B101","doi-asserted-by":"publisher","first-page":"7776","DOI":"10.1109\/ACCESS.2017.2696365","article-title":"Machine learning with big data: challenges and approaches","volume":"5","author":"L\u2019Heureux","year":"2017","journal-title":"IEEE Access"},{"key":"B42","unstructured":"MarzN. WarrenJ. New York, NYManning Publications CoBig Data: Principles and Best Practices of Scalable Real-Time Data Systems.2015"},{"key":"B43","volume-title":"Big Data: A Revolution That Will Transform How We Live, Work and Think.","author":"Mayer-Schonberger","year":"2013"},{"key":"B100","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1155\/2014\/134023","article-title":"Managing, analysing, and integrating big data in medical bioinformatics: open problems and future perspectives","author":"Merelli","year":"2014","journal-title":"BioMed Research International"},{"key":"B44","doi-asserted-by":"publisher","first-page":"205395171665021","DOI":"10.1177\/2053951716650211","article-title":"Where are human subjects in Big Data research? The emerging ethics divide","volume":"3","author":"Metcalf","year":"2016","journal-title":"Big Data Soc."},{"key":"B45","doi-asserted-by":"publisher","first-page":"303","DOI":"10.1007\/s11948-015-9652-2","article-title":"The ethics of big data: current and foreseeable issues in biomedical contexts","volume":"22","author":"Mittelstadt","year":"2016","journal-title":"Sci. Eng. Ethics"},{"key":"B46","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1007\/978-3-319-10665-6_5","article-title":"Big data governance","volume-title":"Big Data and Analytics","author":"Morabito","year":"2015"},{"key":"B47","first-page":"120","article-title":"A comprehensive review of data governance literature","volume":"8","author":"Nielsen","year":"2017","journal-title":"Selected Papers IRIS"},{"key":"B48","doi-asserted-by":"publisher","first-page":"81","DOI":"10.1109\/MIS.2016.70","article-title":"Ethics for big data and analytics","volume":"31","author":"O\u2019Leary","year":"2016","journal-title":"IEEE Intell. Syst."},{"key":"B49","volume-title":"Weapons of Math Destruction: How Big Data Increases Inequality and Threatens Democracy.","author":"O\u2019Neil","year":"2016"},{"key":"B50","unstructured":"Luxembourg: publications Office of the European Union: european commission2013"},{"key":"B51","doi-asserted-by":"publisher","first-page":"113","DOI":"10.1080\/23299460.2014.882065","article-title":"The UK engineering and physical sciences research council\u2019s commitment to a framework for responsible innovation","volume":"1","author":"Owen","year":"2014","journal-title":"J. Res. Innov."},{"key":"B52","doi-asserted-by":"publisher","first-page":"1510","DOI":"10.1038\/nn.3818","article-title":"Making big data open: data sharing in neuroimaging","volume":"17","author":"Poldrack","year":"2014","journal-title":"Nat. Neurosci."},{"key":"B53","doi-asserted-by":"publisher","first-page":"297","DOI":"10.1016\/j.annepidem.2017.05.002","article-title":"Ethics, big data and computing in epidemiology and public health","volume":"27","author":"Salerno","year":"2017","journal-title":"Ann. Epidemiol."},{"key":"B55","doi-asserted-by":"publisher","first-page":"20","DOI":"10.5465\/amj.2007.24160882","article-title":"Persuasion with case studies","volume":"50","author":"Siggelkow","year":"2007","journal-title":"Acad. Manag. J."},{"key":"B56","doi-asserted-by":"publisher","first-page":"263","DOI":"10.1016\/j.jbusres.2016.08.001","article-title":"Critical analysis of Big Data challenges and analytical methods","volume":"70","author":"Sivarajah","year":"2017","journal-title":"J. Bus. Res."},{"key":"B57","volume-title":"Big Data Governance: An Emerging Imperative.","author":"Soares","year":"2012"},{"key":"B58","unstructured":"Big data governance SoaresS. 2013"},{"key":"B59","doi-asserted-by":"publisher","first-page":"105","DOI":"10.3389\/fnhum.2019.00105","article-title":"Beyond research ethics: dialogues in neuro-ICT research","volume":"13","author":"Stahl","year":"2019","journal-title":"Front. Hum. Neurosci."},{"key":"B61","doi-asserted-by":"publisher","first-page":"1099","DOI":"10.1093\/jamia\/ocy040","article-title":"The role of ethics in data governance of large neuro-ICT projects","volume":"25","author":"Stahl","year":"2018","journal-title":"J. Am. Med. Inform. Assoc."},{"key":"B60","doi-asserted-by":"publisher","first-page":"20","DOI":"10.1080\/21507740.2016.1138155","article-title":"Managing ethics in the HBP: a reflective and dialogical approach","volume":"7","author":"Stahl","year":"2016","journal-title":"AJOB Neurosci."},{"key":"B62","doi-asserted-by":"publisher","first-page":"1568","DOI":"10.1016\/j.respol.2013.05.008","article-title":"Developing a framework for responsible innovation","volume":"42","author":"Stilgoe","year":"2013","journal-title":"Res. Policy"},{"key":"B63","doi-asserted-by":"crossref","unstructured":"Von SchombergR. Towards Responsible Research and Innovation in the Information and Communication Technologies and Security Technologies Fields.2011","DOI":"10.2139\/ssrn.2436399"},{"key":"B64","doi-asserted-by":"crossref","unstructured":"WachterS. MittelstadtB. D. Columbia Business Law ReviewA Right to Reasonable Inferences: Re-thinking Data Protection Law in the Age of Big Data and AI.2019","DOI":"10.31228\/osf.io\/mu2kf"},{"key":"B65","doi-asserted-by":"crossref","first-page":"2509","DOI":"10.1109\/BigData.2015.7364047","article-title":"Big data provenance: challenges, state of the art and opportunities","volume-title":"Proceedings of the 2015 IEEE International Conference on Big Data (Big Data)","author":"Wang","year":"2015"},{"key":"B66","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1145\/1515693.1515696","article-title":"One size does not fit all\u2014a contingency approach to data governance","volume":"1","author":"Weber","year":"2009","journal-title":"J. Data Inf. Qual."},{"key":"B67","unstructured":"IT governance on one page WeillP. RossJ. W. MIT Sloan Working Paper No. 4517-04; CIS Research Working Paper No. 3492004"},{"key":"B68","doi-asserted-by":"publisher","first-page":"160018","DOI":"10.1038\/sdata.2016.18","article-title":"The FAIR Guiding Principles for scientific data management and stewardship","volume":"3","author":"Wilkinson","year":"2016","journal-title":"Sci. Data"},{"key":"B69","unstructured":"Ethics, big data, and analytics: a model for application WillisJ. E.III. CampbellJ. PistilliM. Educause Review Online.2013"},{"key":"B71","first-page":"1","article-title":"Specifying and implementing data infrastructures enabling data intensive science","volume-title":"Proceedings of the XVII International Conference on Data Analytics and Management in Data Intensive Domains","author":"Wittenburg","year":"2015"},{"key":"B72","volume-title":"Case sTudy Research: Design and Methods.","author":"Yin","year":"2014"},{"key":"B73","volume-title":"Understanding Big Data: Analytics for Enterprise Class Hadoop and Streaming Data.","author":"Zikopoulos","year":"2011"},{"key":"B74","doi-asserted-by":"publisher","first-page":"e1005399","DOI":"10.1371\/journal.pcbi.1005399","article-title":"Ten simple rules for responsible big data research","volume":"13","author":"Zook","year":"2017","journal-title":"PLoS Comput. Biol."},{"key":"B75","doi-asserted-by":"publisher","first-page":"205395171455925","DOI":"10.1177\/2053951714559253","article-title":"Big Data ethics","volume":"1","author":"Zwitter","year":"2014","journal-title":"Big Data Soc."}],"container-title":["Frontiers in Neuroinformatics"],"original-title":[],"link":[{"URL":"https:\/\/www.frontiersin.org\/article\/10.3389\/fninf.2019.00028\/full","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,9,16]],"date-time":"2022-09-16T19:20:11Z","timestamp":1663356011000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.frontiersin.org\/article\/10.3389\/fninf.2019.00028\/full"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,4,24]]},"references-count":73,"alternative-id":["10.3389\/fninf.2019.00028"],"URL":"http:\/\/dx.doi.org\/10.3389\/fninf.2019.00028","relation":{},"ISSN":["1662-5196"],"issn-type":[{"value":"1662-5196","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,4,24]]}}}
