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Link to original content: http://pubmed.ncbi.nlm.nih.gov/23577037/
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. 2013:2013:507034.
doi: 10.1155/2013/507034. Epub 2013 Mar 20.

The meaning of leprosy and everyday experiences: an exploration in cirebon, indonesia

Ruth M H Peters  1 , Dadun, Mimi Lusli, Beatriz Miranda-Galarza, Wim H van Brakel, Marjolein B M Zweekhorst, Rita Damayanti, Francisia S S E Seda, Joske F G Bunders, Irwanto
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The meaning of leprosy and everyday experiences: an exploration in cirebon, indonesia

Ruth M H Peters et al. J Trop Med. 2013.

Abstract

It is imperative to consider the meaning of leprosy and everyday experiences of people affected by leprosy and key persons in the community if one aims to make leprosy services more effective, which appears necessary in Indonesia given the large numbers of new cases detected annually. However, little is written in the international literature about the experiences of people currently being treated for leprosy, those cured, or other key informants. This paper analyses the narratives of the people by drawing upon in-depth interviews with 53 participants and 20 focus groups discussions. The participants were purposively selected. We provide insights into the experiences of people and the meaning they give to leprosy and highlight aspect of aetiology, spirituality, religion, darkening of the skin, and sorcery. We also examine experiences of seeking care and focused on the impact of the disease in particular on the elderly and children. In conclusion, the continued need for implementation of leprosy services in Indonesia is very evident. The diversities in people's experiences with leprosy indicate a demand for responsive leprosy services to serve the diverse needs, including services for those formally declared to be "cured."

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Figures

Figure 1
Figure 1
10-year trend of new case detection rate in Indonesia, West Java and Cirebon in 2002–2011 (data is merged from [21, 22]).
Figure 2
Figure 2
10-year trend of % visible impairments among new cases in Indonesia, West Java and Cirebon in 2002–2011 (data is merged from [21, 22]).
Figure 3
Figure 3
10-year trend of % children among new cases in Indonesia, West Java and Cirebon in 2002–2011 (data is merged from [21, 22]).
See this image and copyright information in PMC

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